(THIS PICTURE IS A LINK TO ISAAC’S PHOTO-A-DAY BLOG)
It’s probably no real surprise to anyone for me to say I’m a perfectionist.
Nor would it surprise anyone to say that I have a “drive” that pushes me forward.
I don’t like standing still.
I hate U-turns.
And, set backs discourage me.
As minor as it is, Isaac had a little set back last night. He had an overly eventful day, so it doesn’t surprise me … it just bothers me.
The last post explained how the nurses had taken him down to the NASAL CANNULA like you’d see in the movies. It’s the lowest form of breathing support that can be given. It helps his little lungs stay inflated by pushing 1 liter of pressure into them. After being moved and held and undressed and redressed a multitude of times yesterday from more visits than would be ideal, he had a rough night last night. His blood pressure dropped a little a couple times last night when he had to work a little too hard to breathe … likely from being tired. So, this AM the nurse put him back onto the HI-FLOW at 2 liters.
It’s really not that much of a set back.
He’s still breathing room air (21% O2).
He’s still digesting all of his food.
He’s still maintaining his own body temp in an open crib.
They were going to try bottle feeds yesterday, but felt it better to wait for today. This is still the plan.
They’re monitoring how he’s doing with the HI-FLOW in hopes that it will be a short-term need.
He really is doing better. It’s just hard to know that there’s nothing we can do … nothing I can do … (It would likely not surprise any of you to hear that I’m also a “fixer.”)
So, keep praying for the little man. He needs it.
PJ, ANGIE, & ISAAC//
PJ Towle
artist / designer / musician
towle.pj@gmail.com